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New Member
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Join Date: Apr 2008
Posts: 1
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New Member
Join Date: Apr 2008
Posts: 1
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Pt. with Marfan Syndrome and symptomatic Tarlov Cyst
Dear Dr. Long: You were referred to us by a neurosurgeon in Boston. My 24-y.o. daughter has Marfan Syndrome and numerous perneural cysts with the largest being at the lumbo-sacral area. Over the past year, she has become nearly incapacitated with back and leg pain - primarily leg. How does one determine if the pain is being caused by the cyst or by another, possibly more benign problem? (Physical therapy and chiropracty have exacerbated the problem.) Her MRIs show only the cysts and no significant disc disease. She has an area of erosion of a vertebral process from the pressure of the cyst. Although she has a Chiari Type I, she has no syringomelia. What testing modalities are used to differentiate for the cause of pain? It would seem that the only way to know for sure is to drain the cyst percutaneously with CT guidance and see if the symptoms disappear. However, if entry into the cyst is going to be made, wouldn't it make sense to do the whole procedure to avoid the necessity for re-entry? We are at the point where we have to figure out what is causing her symptoms in order to know what to do next. Can you please advise? Thank you for your time. Tricia
Last edited by Jomar; 11-30-2008 at 12:40 AM.
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