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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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totally not right
Vic, thanks for the advice, but none of it is working. My case worker even called there. They said the doc said that I can go 5.5 weeks in between, it's fine with him. I told the woman (from the infusion center) that it's all fine and good that the doc is fine with it - but it's MY body that feels like crud, not his...and I'm not fine with it. Nothing anyone can do. To switch now means having to go further from home and no guarantee they can get me in on time either. I just don't understand any of this - or why it keeps falling on my head.
In other news, at least somewhat positive, is that it looks like my first transfusion will cost me a total of $515. The infusion place actually does not make a lot of money off of this at all - they make a total of $2700 - and that includes the meds...so they pay at least 2k for the meds.
Vic, I'm not sure why you're infusions are running so much money! I don't get that. Does your ins cover any of it? I have an 80/20 plan - so I pay 20% copay...which comes out to 515 for this.
I need to cancel my weekend away b/c even if I felt wonderful after the infusion, it still doesn't work - b/c I was supposed to leave on Thursday - and the tx is on Friday. 
k
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