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Old 04-22-2008, 06:54 PM
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MSacorn MSacorn is offline
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Join Date: Apr 2007
Location: north coast of Ohio
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MSacorn MSacorn is offline
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Join Date: Apr 2007
Location: north coast of Ohio
Posts: 1,130
15 yr Member
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Originally Posted by Rissa_TX View Post
Hi everyone, I'm Carisa. I was just officially diagnosed last week, but have been trying to figure it all out for the last 5 months. It started with weakness and tingling in my hands, and I finally had an MRI and spinal tap in early April. They're telling me that I have about 30 lesions in my brain but none in my spinal cord and no "bands" in my spinal fluid. Because I've had two "CIS" episodes, they've given me a diagnosis of RRMS. Now my neuro is wanting me to get on the disease modifying drugs, but hasn't provided much guidance as far as the differences between the drugs. Basically, he handed me armloads of drug company generated binders and told me to do my own research. (I know - I'm currently looking for a new neuro.) So, after doing all my own research, I'm finding myself waffling between Avonex and Copaxone. But, I can't seem to tell if there is a big difference between the effectiveness of the two drugs... it seems to me that if they're both just as effective (around 30%), I'd rather take the one that doesn't make me sick. Does anyone have any insight for me? Thank you!!!!
p.s. I'm so glad to have found a place to talk to others with MS!

Hi Carisa
Welcome to NT. Sorry about your dx, but you're in a good place now. I've tried Avx and copax. The A lasted 6 months, and I had a fever for 4 of the 7 days between injesctions. Needless to say, I stopped.

I was on C for a couple years, no s/e other then injection site stuff and necrosis of the backs of my arms, hips and legs. I was taking Imuran also. So my doc took me off the C and kept me on I. Several years later I'm still on Imuran and just started Namenda (anti-alzheimer med) last week.


Looking forward to more posts and getting to know you.

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Rissa_TX (04-23-2008)