I know Jaime S has O.N. and I sent her a message with a link to your post in the T.N. forum Alices .You are a awesome Mother to be seeking help and info for your daughter. I have a snapped trigeminal nerve so I supose the pain would be pretty near much like a nerve that has been cut. so I can realte to that most definatly. and if you want to share talk about that well I am here and willing to help and offer support to you and your daughter.
Neuro talk is a great site filled with many kind caring funny people that are ready to support and give info and listen. so I hope you find neuro talk as awesome as I do. and I am glad you found your way here. we have a care givers forum and many ohers that you might find fun and or helpfull so scroll the index and jump in anytime anywhere.
Many blessings to you and your daughter&family.
Peace BMW