I was diagnosed with TOS in February, but I would say that I've had symptoms since 1999. I went to a doctor then because of the pain and I could feel a lump in my neck. They told me it was just scar tissue from lifting weights and it was left at that. The pain would always come and go and always get worse if my heart rate went up. My symptoms got much worse last June and kept getting worse. Now I'm in constant pain, yesterday I felt like puking I hurt so bad. I also bumped my thumb on a chair lastnight and thought I was going to pass out. The main cause for my TOS is that I have a cervical rib on the right side. I'm glad I didn't listen to the first doctor I seen, he told me there was nothing they could do for me and didn't believe I was in any pain.