Up at 3 am and still being productive - see - who needs a job? I emailed a neurologist with PD who has elected to have DBS at a younger age. He didn't know the answer for sure, but highly doubted that SSDI would go after anyone for DBS improvement. He doesn't think there would even be questions asked in most cases. It is deceiving to think you are actually better.

There are too many issues with PD that make it hard to work other than just the motor symptoms that the DBS would address. He doubted that they could win against a patient and would never recommend NOT to have one for that reason.

I'd put that worry to rest, and make working a personal choice that will not overtax you. Ironically, we actually can't afford to work in many cases - and we sure do become unreliable - so much variability from day to day, even hour to hour.

Paula