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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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But wait! There's more!
In addition to the UPDRS, I use a simplified day tracker to record my subjective state from hour to hour. Since this is a much simpler form I have more of them. I am going to do first and last as before but add in one or two between.
9/12/05
Tracking scale (0 = Wheelchair/ 5 = Obvious to 3rd party / 10 = Ballet dancer}
Arising = 6
9 AM = 10
3 PM = 8
5 PM = 3
7 PM = 7
11 PM = 3
Turning in bed = 7
Hours of sleep 6 to 8
Avg times up to pee 2
12/15/05
Tracking scale (0 = Wheelchair/ 5 = Obvious to 3rd party / 10 = Ballet dancer}
Arising = 6
9 AM = 10
11 AM = 9
1 PM = 7
3 PM = 9
5 PM = 9
7 PM = 8
11 PM = 7
Turning in bed = 7
Hours of sleep 5 to 8
Avg times up to pee 2
3/19/06
Tracking scale (0 = Wheelchair/ 5 = Obvious to 3rd party / 10 = Ballet dancer}
Arising = 5
9 AM = 7
11 AM = 8
1 PM = 7
3 PM = 7
5 PM = 7
7 PM = 8
11 PM =
Turning in bed = 6
Hours of sleep = 10
Avg times up to pee = 4
7/05/06
Tracking scale (0 = Wheelchair/ 5 = Obvious to 3rd party / 10 = Ballet dancer}
Arising = 5
9 AM = 8
11 AM = 10
1 PM = 10
3 PM = 10
5 PM = 10
7 PM = 8
11 PM = 6
Turning in bed = 5
Hours of sleep = 7
Avg times up to pee = 2
11/08/06
Parkinson’s Tracking scale / Date:_11/_08/_06_
(0 = Wheelchair/ 5 = Obvious to 3rd party / 10 = Ballet dancer)
Arising = 4
9 AM = 6
11 AM = 10
1 PM = 10
3 PM = 10
5 PM = 10
7 PM = 9
11 PM = 3
Turning in bed = 6
Hours of sleep =7
Avg times up to bathroom = 3
12/31/06
Parkinson’s Tracking scale / Date:_12/31/06
(0 = Wheelchair/ 5 = Obvious to 3rd party / 10 = Ballet dancer)
Arising = 5
9 AM = 8
11 AM = 8
1 PM = 8
3 PM = 7
5 PM = 7
7 PM = 7
11 PM = 5
Turning in bed = 5
Hours of sleep =8
Avg times up to bathroom = 0
4/20/08
Parkinson’s Tracking scale / Date:_
(0 = Wheelchair/ 5 = Obvious to 3rd party / 10 = Ballet dancer)
Arising = 4
9 AM = 9
11 AM = 9
1 PM = 8
3 PM = 7
5 PM = 7
7 PM = 7
11 PM = 4
Turning in bed = 8
Hours of sleep =8
Avg times up to bathroom = 1
The changes aren't as dramatic but they are in the right direction. If one averages the first and last groups of hourly ratings, you get about six on the first and about seven on the last. Very subjective of course.
Finally, I will add some other data in one more post.
g
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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