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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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My gawd! Can no one stop him?
I also record a couple of other easy bits of data.
One is simply the number of steps it takes to cover a hundred feet in a relaxed manner. Shortening of stride is considered a sign of deterioration so lower numbers are good, higher bad.
4/20/08----35 steps
10/23/07-----36 steps
1/10/07---------35 steps
11/25/06-------38 steps!!!
I definitely will look at that short period at the end of '06.
Finally, I also use a "balance on one foot" test as a measure of balance and leg strength and for testing new supplements.
4/20/08------on right foot 18 sec / on left 44 sec
2/20/07-----------rt 25 / lft 78
1/21/07-----------22 and 50
12/31/06---------18 and 43
12/19/06---------5 and 18!! Again the end of '06.
Now, at last, some useful data-
"12/19/06
Still doing better overall but not as good as at first. Have been skipping all supplements so that may be cause. Will restart today.
Adding A-lipoic acid; ALC; Carnosine; Fish oil; multi; green tea; ginger"
I remember that turnaround because it was so dramatic and also the first time I used the balance tactic. It was the combo of alpha lipoic acid, acetyl-L-carnitine, and L-carnosine and it happened over about a three day period.
"1/21/07
Baseline info: I am taking every two hours or so; Requip 4 mg (1X) and Sinemet CR 25/100 (1X) for a daily total of 28 mg Requip and 700 mg levodopa
In addition I take 5 mg Eldepryl with my first dose and sometimes a single Sinemet 10/100.
Supplements: Alpha Lipoic Acid; Acetyl-L-Carnitine; L-Carnosine; Green Tea Extract; going to drop Ginger since Turmeric duplicates; Fish Oil; Flax Oil; just started Creatine
I am doing moderately well and much better than I was last month. Sleeping 7 to 9 hrs; polyuria mostly gone and am up avg of two times per night (occasionally none); good bladder control in daytime for the most part. Turning in bed has improved noticeably."
Well, for what it is worht. It was interesting to compile the mess.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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