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Old 04-24-2008, 12:56 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Yes that is basically it

I rate it, however, at the best period in my daily cycle. So, on a given day I might move between the extremes with my highest scores when I first get up and my lowest (0) at late morning when things are working well. That is one reason I worked up the other system since the UPDRS didn't tell me how I was doing at a particular time of day, say, last year

I don't want anyone to read too much into it because it was not designed for anything but my own tracking and to be honest I could have done better on recording data, but the general improvement instead of decline is solid and important. I just wish the reasons why were clear..

Quote:
Originally Posted by accu200 View Post
Are you saying that when you are medicated you have a 0 score.That would mean you have no symtoms of PD while medicated.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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