Alison,
I still enjoy participating in all life has to offer and I look at all the obstacle ALS provides as an adventure. It would be easier to just lay in bed all the time but that isn't me. I'm a people person and I like interaction with others.

If I never got out of bed or participate in life I wouldn't expect my family to provide care for me at home. It's not like I really expect them to even now but they want to because I'm game to get out and go wherever they want to go. If I never got out of bed I'd rather be stowed away in a nursing home somewhere.

I don't always side with the PALS every time I hear of the CALS leaving after a period of time because of that very reason.