OK now...back...good grief! What a drive...400 miles, mostly at 85 mph...LOL...in a mouse sized car with a ten year old and a cranky 6'6 man...

As I posted before, infusion # 13 yesterday. A whole year down on Tysabri. No problems, no concerns, just gravy.

While sitting there for three hours I decided to take apart the tissue thin patient leaflet in the new box and compare it to the old one. Big changes were made to the whole thing. Right off the bat I noted the large 4x3
inch black outlined box at the very top of the page had changed to a light lined 1x3 inch box and it's not all PMLPMLPMLDEATH anymore. The new patient leaflet contains information for both Crohn's patients and MS patients. It includes studies for both. It's a much more positive, much less scary leaflet now.

I'm not going to post the whole leaflet, but for those of you who are on Tysabri, ask for your box and check out the new stuff.

I haven't had a relapse for one year now, the longest I have been relapse free since I was diagnosed. I see my neuro in a week or so and sign for the next six months. I cannot wait. I also cannot believe it's been a year of infusions. I feel like I remember every shot I ever took and now I actually feel like the whole infusion process is just a rest stop in my busy month!

The ONLY complaint I still have ongoing is the spasticity and stiffness. I can live with it, but I don't like it! I'm still trying different things to try to overcome it, I think the swimming and exercise is doing some good, but the cold water pool still bites! I haven't figured out how to get my insurance co. to pay for the warm water saline pool, but the therapists there are working with me on it and I may yet see results from that end.

I've been thinking about the past year and how much has changed for me personally since I started this drug. Life has become something to look forward to again, instead of something to be afraid of. Now I still save for what ifs, but think maybe the what ifs might be GOOD what ifs!

I wish everyone luck with this drug. It's worked for me just as I had hoped it would.

Even if I never get back to where I was before, at least I am not where I could have been if it wasn't for Tysabri.

Thanks for the support from everyone here. You all make it bearable when things are bad and my attitude starts to flop! You ROCK!