Hi: We haven't met yet. I just joined this group a few days ago. I have had RSD for several years now abd one thing I can tell you is it is unpredictable! It can move that fast or slow. It all depends on the person. My original site was my right hand from surgery.I have totally lost any use of it now plus 90% use of the left hand too.

My feet were fine, until I woke one morning after about 2yrs after being dx'd and I couldn't walk! Not 1 step without screaming in pain and falling down. Overnight;go figure. They did every test in the book. I went to a neurologist,orthopedist,several types of arthritis/bone specialists, oncologist and still nothing. MRI's, 20+ vials of blood (taken over several days), x-rays, everything. I hope your doctors do better than mine. I can walk a little now some days, with medicine additions and changes. But now it has spread to my jaw and other places.

Anyway, I hope you find a definitive answer. A diagnosis of arthritis isn't good either because there isn't a cure for that either. I have been getting treated for that. The drugs are dangerous. It seems like once you get a diagnosis of RSD, their is also a diagnosis of arthritis, back issues, neuropathy, and chronic pain syndrome. I saw my pain management doctors billing ICD codes and that's what he has on mine.

So, good luck and I'll be watching your conversation to see how it went.