Hi Julie~
I wanted to pop in and let you know that I'm very sorry your son has to be sent to an epileptologist. On the same token, I'm glad he is going to be getting treatment. I hope it makes a big difference for him!

I have epilepsy too. It started suddenly after a closed head injury I received in a head on collision back in '90. The seizures started 5 years after the accident, and started with a grand mal seizure outta nowhere. The grand mals are under control with medication now, but do still have petit mals fairly often. Extreme amounts of stress are my main triggers!!

My main seizure med is Lamictal, and Neurontin the secondary. I started out on Dilantin, which didn't work for me. Then we tried Gabitril w/Neurontin backup, which worked for awhile, and now I've been on Lamictal for about 5-6 years. I'm taking Neurontin as a secondary anti-epileptic drug, as well as nerve pain.

Wishing you and your son the very best of luck in finding the right med and med levels!!
{{{{{hugs}}}}}}
~Kimmy