I would tell them to find your testing . I don't know your symptoms etc. but I would advise you to go in when your sick. I really mean this, show them when you are at your worse and bring someone with you and into the exam room and stay with you to participate in your questions. Again immunosuppression can affect titres. The best place to have your serum sent is Mayo but if you do it close to the steroid use, it's not accurate. So please if you are going to have blood work done ask the neuro when would be the best time after steroids. Have you had an EMG? I wish you the best in your quest for help. If you take Mestinon it can affect the results of the EMG.