[QUOTE=sheena;268088]1st Infusion I had 2 sides - rash (1 day nothing to speak of ) and swelling of the /feet/ankles/
2nd infusion I had 2 sides - rash (now getting better but turned as some do ) to a burn, a lot more swelling of the feet/ankle/leg ( left). It was bad, but I controlled with Benadril. Almost back to normal 1 week later
BTW - swelling is listed in the IV handout as a side
Since the sides on the last infusion were much worse then the 1st time, I have left message with neuro. If next time were to be worse then this, I would have to go to ER. I'm not scared of the sides as long as neuro knows. This is the pro ty neuro.
What is your guess? Will he pull me off ty or let me stay on.[/QUOTE]
Sheena, you should be direct with your neurologist about the prospects of using another medication if Tysabri is causing problems. I suggest strongly that your neurologist keep as many avanues open for you as possible.
Keep us posted.
-Vic
Quote:
Originally Posted by CBo79
Hi my name is Crystal, I just introduced myself in the Newby forum. I have been dx'd since Feb 2005. I have had HORRIBLE MRI's in the past so they started me on Ty in June 2007, I thought it was my miracle drug and was doing awesome on it, until Feb 2008. I have had extreme pain in my legs, numbness in arms/hands/legs, spasticity (this is new never had it before), memory loss, vertigo, insomnia, and depression.
Am I the only one who has relapsed while being on Ty? I go see a new neuro on Wed and I hope he can spread some light.
I also quit working in March and am filing for LTD and SSDI. UGH! This seems like a great board!
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Crysal, you are not the only one who has had an exacerbation while using Tysabri. There are many folks for whom Tysabri just is not helping. Be sure to discuss alternative medications with your neurologist on Wednesday. Let us know how it goes.
-Vic