Patricia, I'm so sorry you're going through all of this. I can certainly relate to your aggravation with neuros. I've only had 1 antibody test done. It was negative, but was done when I was just coming off steroids, so could have been negative as a result. So I don't really know if I'm seroneg, or actually seropositive but which was hidden by steroids. I've only had 1 EMG done, the neuro didn't even know enough to tell me not to take my Mestinon, then it was performed by a technician who was being trained, on a instrument which was not working right, and turned out, surprise, surprise, negative. So I don't know whether I'm negative EMG, or actually positive, but with the results hidden by Mestinon and sheer incompetence.
Gumby, many thanks for posting the info about pain in MG. I've always had some pain, but hesitated to mention it to the Drs., since MG "isn't associated with pain"!
Hugs,