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Old 04-29-2008, 12:43 AM
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RedPenguins RedPenguins is offline
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Join Date: Jan 2008
Location: Southern California
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RedPenguins RedPenguins is offline
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Join Date: Jan 2008
Location: Southern California
Posts: 308
15 yr Member
Default Yay Victor! Sorry Sheena

Yay Victor on getting the cost of your Ty down. What they were charging you is ridiculous! I believe mine is costing me about $520 a month...which is high. Amazing, I have friends who have Kaiser...they pay NOTHING for their tysabri! Craziness.

Sheena - sounds like you're having a rough ride from your infusions. I do hope your doctor will talk to you about all of your options if he does decide to stop the Ty. Sad you're having bad reactions. The first 5 days after Ty, I can barely move - so "exhausted" thought it's unlike the other MS fatigue....hard to explain, but I feel like 5000 lbs of lead are on top of me.

Supposed to go for second Ty on May 9 - but am reconsidering as I am now in talks with Johns Hopkins about that treatment...

~k
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"Thanks for this!" says:
Riverwild (04-30-2008), sheena (05-02-2008)