Neuro just called and I told him about the sides. He is keeping me on TY! He said if I had this reaction w/this drug then I prob would with another and much, much more often. Their going to see how I do next mo. I feel so much better; all is out in the open and I feel safe again.

I just checked my ins and the infusion center billed 1000.00 more this mo. They went from 5200 to 6200. A little worried about this. It's still in processing so time will tell.

Red - I looked at your info ref Hopkins. It looks very good. I think I might consider it hard, if I could qualify. But, I can't due to weak lungs. I wish you all the best if you decide to go that way.