Rosebud


I was diagnosed 3 1/2 years ago with with P.d..I am 53 years old ,I was having lots of symptoms 2 years previous to being dianosed ,but it took 2 years to find out what was wrong with me I have had it 5 years that i know about but my Neuro said that he thought i have had it possibly 5 years previous to that.I have been on Madopar 100/25.1x 3 times a day and Tasmar 1x 3 times a day I think that this is a small dose .my neuroligist said i am very sensetive to the levedopa.

I heard about the mucuna pruriens and thought i would like to give it a try.I purchased the mucuna and started it on a weekend as i did not want to try anything new while I had to go to work.
I have been on it for nearly 5 weeks now and it is working well.In that 5 weeks I would have taken about 80 madapor and 80 tasmar ,There has only been about 3 or 4 times over that period of time that the mucuna did not work and as i was at work so I took half a madopar on those ocassions.It wasn't until I read all the posts that you have all been writing that i realised that i probably should not have gone staight off them.i just wanted to tell you that I did not have any problems when i stopped all my parkinson tabs. I feel that the mucuna is really working well for me,When i start to go off with the mucuna my off times are definitely not as bad as when i was on the parkinson meds.With the parkinson meds when I was off I would have to sit and wait till I was on again because my legs were so shakey and i got the internal tremors back ,my fine motor skills were not good all my p.d symptoms came back.On the Mucuna my off times are no where near as bad I can still work and feel stable on my legs.My fine motor skills are really good.I feel that I am much better on the mucuna, A couple of times I have gone about 6 or 7 hours before needing the Mucuna.I dont know that the madapor that i took made my parkinson's better or worse i had so much going on that i did not know if it was my parkinsons or the medication giving me problems,But i do know that i feel so much better with the mucuna ,and dont have any side effects especially no dyskensia which was my biggest problem.

I just want to say how much I enjoy all your posts you all know so much about parkinson disease,It is great to be able to talk to others who understand.


sue