The posters on this board are wonderful and you are what helped me make my final decision to start Ty! I've only had one infusion so far, but I am really interested in hearing everyone else's experiences so that I can keep informed and lend an ear (eyes actually). I was diagnosed just over two years ago and I still feel like a newbie.

I am fortunate to work from home because my job allows me to telecommute. I don't have time to post, except in evenings, but I'm eager to meet and help if I can. Could we work as a group to raise money for Ty users struggling to afford high copays or even the full price of the medicine? I am paying 7.8 times as much as I did for Copaxone monthly, but it is still far less than what some people have posted. I was thinking of Cafe' Press t-shirts, charity fundraisers at national chain restaurants, etc...something we can do no matter where we live? Would the NMSS or Biogen Idec support something of this nature or even keep an account for us so that it goes to the patients who can benefit? I definitely don't want to be in charge of the money, or to whom it goes, but I want to help organize raising funds.

Any thoughts?