Ok now before my PN, I had a discectamy on Lumbar spine at 2 levels. I have had a very bad back since 1999, chronic back pain and sciatica. Over last 4 years my neck started hurting too. When I carried my purse or any shopping bags around, the muscles in neck would burn, sting, and ache. But none of this really bothered me. I just accepted it.

Before my PN this was the only problem I had. Before my PN I had both flu/bronchitis and gut infection with H.Pylori. Then PN came on with bizarre burning in eyes,face vertex of head and made it's way downward. To be honest I don't think there is one nerve in my whole body that hasn't been affected as I have been in pain absolutely everywhere. Since 18 months ago when PN came on there has been some recovery and abating. I would say about 50-60% better.

But I have alot of deep tissue like pain,aches,tension,zapping, & prickling. I was diagnosed with post-infectious a typical sensory neuropathy through a process of molecular mimicry. I also have developed hypertension, and what appears to be anxiety/panic. I have just started seeing a phychologist for this because this is probably the thing that concerns me the most. I am sick and tired of the anxiety, it's quite exhausting. I also have a bit of either TMJ or extra pyrimidal symptoms from side-effects of my Trycilic. I bite my tongue all the time,and clench my teeth. My jaw deviates on it's own. By the way I stopped the tryciclic and my anxiety reached unsurmounted proportions. I had no idea just how bad off I was until I stopped the tryciclic. I am also having trouble sleeping at nights. So that's an update on me. I take hypertension meds,and have to take Advil for pain, but I soldier on, and am thankful that it's not worse. All my routine bloods are continuously normal but my ESR is always slighty raised. (0-16 normal range). Mine is 25-29 ususally. So there is some degree of inflammation somewhere. But that can even be from my discs when they flare. My blood creatinine is usually a tad bit low, but I have had kidneys checked and they are fine. Did a 24 hour urine test. Have been told that slightly low is normal and also good.

But anyone who has any recovery is truly inspirational and gives us all hope.