hi my name is Jess. Im very new to this i jus signed up for neurotalk. I have a little brother (age 3 as of rite now) who suffered a stroke at 6 weeks old. He was an infant at the time which was why it was very difficult for me and my family to tell. Plus no one in my family has ever suffered a stroke so we didnt expect it. He began crying nonstop continuosly for hrs. we took him to his pediatrician who said it was normal for a baby to cry and to get used to it. So we took him home where he continued crying even more. Next day during the afternoon he began facing one side. We realized he stopped crying but would not turn his face in any direction but was indeed stiff to one side. We panicked and rushed him to the emergency room expecting something as small as a stiff neck or something, anything BUT A STROKE. None other then to hear the neurologists tell us " ur son has just suffered a major stroke by the name MOYA MOYA. He will not be able to eat through his mouth but will be on a ng tube feeding through the nose. He will be on oxygen alot of the time. He will also have vision issues, hearing issues, etc. He said he suffered a stroke that would ordinarily kill a human being but since ur son is so young and he was able to survive. However the stroke damaged 80% of his brain. He may not be able to walk, talk, eat through his mouth, etc. We then did some more research and found out that the hospital my brother was born in new he was born with water near his brain, etc etc. Wen he was born his heart slowed down so he was rushed before my mother could hold him and given oxygen and taken to ICU. The hospital was aware my brother was not ready to be relaesed but let him go. As a result my brother may be deprived of a normal life. We've been told to go for more opinions and find other great neurologists/neurosurgeons that can help us and give us some ideas as to what we should do now. He is now 3yrs old and like i said before, cant walk, talk, eat through his mouth, doesnt see, and hears but the slightest noise make him jump up in fear with a racing heart becuae he does not have an alert nervous system,he does feel wen u tickle the bottom of his foot, nearly crys wen u try to feed him & etc. Im his older sis but not the oldest sis. Im only 17 yrs old.We're a family of 7 children and i seem to not give up because i still believe there is a chance. I've never heard of a situation like my very own but would like advice from someone, who can recommend neurosurgeons and ideas. I also want to know if n e 1 knows anything about stem cell research and where it stands because i know that it may be a cure for strokes, paralysis, brain damage etc. Please if ne 1 can help dont hesitate. If u know ne 1 that has been in a situation please tell me what they did. I do believe my brother will get better but its hard to not lose hope wen u hear so many ppl remind u that it was 80% of his brain that was damaged. I believe in God and miracles and i do think he will be better. My mom crys every nite believing its her fault. Ok thanx now!! looking forward to hear what u guys have to say.