Thanks,
We did get our testing through Igenex in CA (we've had 7-8 CDC and Igenex positive Western Blots - she gets tested every 3 months) and have had both of her doctors agree that the MS appears to be in her brain stem. Actually, Lyme and MS are very intertwined as they are both demylineating and look the same on MRI. I was hoping to find anyone else that has MS in the brain stem. Thanks, Lymiegal