Welcome Addy!
You sure have a lot to deal with, I hope the doctor is wrong about Shy-Drager Syndrome. If you read about it at Mayo, you'll see that it can be similar to other illnesses and is also hard to diagnose.
http://www.mayoclinic.com/health/shy...ndrome/DS00989 I'm hoping that your problems are from something else and they can get to the bottom of it all.
Enjoy NeuroTalk, it's a great place!