Hi Alices,
There is a neurology forum called "BrainTalkCommunities Online Patient Support Groups for Neurology". This site is almost identical to the one that we are on, but they have a forum specifically for Occipital Neuralgia. I just checked to be sure. Since I am new here, I cannot post a link, but google what is in "quotes" above, and you should be able to find it.
Best of luck, I hope you are able to find the information that you are looking for.
Mylastnerve