Dear Mark,

This is indeed sombre news which would make anybody cry at the very, very least. I am really knocked back by learning of this new diagnosis and have only love and hugs to offer you.

I think, though, that while the diagnosis is shocking, in one way it's just putting a name to a collection of symptoms you've had for some time - the name doesn't change anything. In fact, now that they know the fundamental cause of the symptoms they can start to treat you properly.

I have the most profound hope that with a more informed treatment regime, you might start to feel significantly better. I know you could hardly have been feeling worse, and right now I'm sure you're feeling mentally very low. Just remember, you are a very special and important member of this community and I for one will do my utmost to be there for you, whatever you need.

So you're not alone, not by a long chalk. You take care now, remember that a tall one can hold his chin up very high...

xxx all the very best.