One thing that is very, very important to remember is YOU ARE YOUR OWN BEST ADVOCATE in terms of all aspects of your medical/health care (--in terms of medical conditions, medications, supplements, etc). I am on a ton of different meds for multiple medical conditions and before I start a new one-- and even at the phase of a doctor merely suggesting it or throwing out ideas, I ALWAYS do my research. I learn about side effects, risks, along with benefits and positives too. What I have also learned over time is that, the more medications you are on, the more likely they are to have some sort of interaction. That is not always a bad or a dangerous thing--- many of my meds react & interact with each other in weird ways and not necessarily a reason not to take the medication, but it often requires a lot more monitoring and keeping closer tabs on things. (f course ythere are some meds that can not be mixed with each other under almost any circumstances, but I am speaking in general terms)

Also, I don't and in my case can't, always rely on everyone of my specialists to know everything about each of my medications-- even though they may be aware of what meds I am on. Frequently, if its not a medication they regularly prescribe or treats something outside their field, they aren't going to be super familiar with it. For example, my neurologist-- whom was made aware of this med and knows I am on it, isn't super familiar with the new appetite stimulant my pcp put me on where as he is with my seizure and other meds; and vice versa for the meds my pcp prescribes that my neuro doesn't, my GYN deals with most of my GYN and GI meds, etc etc. They each deal with their own thing and while they may be aware of other things and often overlap, they can't be all and know all about everything. I've dealt with this so many times and I know it can get really frustrating. Thats why it is so important to do your homework, be aware of things, ask questions--- and even ask your doctors to research things you are unsure of-- you are your own best advocate.

Also, remember the pharmacist can be one of your best allies.

Practically speaking, while all my meds are "supposedly" in the hospital computer system, I always carry a list with me of all of them whenever I go to any dr, hospital, ER, etc.

I am so sorry your doctors weren't receptive and minimized all the weird things happening to you. I've had the same thing happen to me on many occasions and often times its taken MONTHS for them to truly "get it" and put two and two together--- even though I may have been telling them that for months. It gets so frustrating....

Hang in there and I am happy you were able to figure out what was wrong and how to correct it !

L2L