Hi Sally, Just want you to know you are not alone. No ne quite understands how debilitating this SI Joint Dysfunction is....not even people with disc pain. I WISH I had a herniated disc that could be "fixed" with a simple, well-known surgery. I am tying to heal without fixation or fusion surgery, but I am certainly not counting it out. It has been a year and half of sheer hell for me. I have been undergoing prolotherapy treatments which do help: (it's prolotherapy.org) . but I belive my pelvis is twisted pretty badly out of place and keeps losing its correct positioning. Don't give up. There is a doctor out there who will help you. Please email me if you ever feel like chatting. I would be happy to let you in on all my "research" findings. I am currently wearing an SI belt that is great: it's .
I definitely feel a lot more stable with it. Don't give up. I have felt like throwing the towel in more than a few times so I know how you feel. I know I will never be the same as I was, but I do have hope for a "somewhat" normal life again.
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Originally Posted by SallyE5756
Well my new orthopedist that had thought he wanted to take out the pins decided that it probably would not give me the results I'm praying for. An SI joint injection reproduced the pain so definitively that they feel that more of my pain is coming from the joint and not the pins. With a failed fusion and incomplete bridging, in my mind, I am seeing pieces of bone that I know is what I feel everytime I take a step. The pins are a component though. SO it sounds like no one wants to help me even the pain management people. My family MD is prescribing longacting narcotics with breakthrough medication. I work about 6 hours a day and spend the rest of my life lying on the sofa or my bed. This sucks so bad I don't know what to do. It is so painful to move around so I just don't. I know this is not the way I want to live. I live and work at one of the finest medical schools in the southeast. The doctor I work for is a pediatric heart surgeon. He saves little babies lives with little conduits that look like cocktail straws or smaller. Yet, no one can fix ONE damn bone in my body. The new orthopedist says that the joint needs to be cleaned out and probably re-fused and no one around wants to attempt that.
My life is absolutely screwed.
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