Quote:
Originally Posted by billh
Hello,
New at this, wondering how everybody is doing on Tysabri? I am trying to get started but have alot of unknowns about the drug.. Some of your posting are great. I would like to know the best and worst of this drug. Been on other drugs not doing well on them. I hate shots  |
Hi Bill and welcome to NeuroTalk!
If you read the whole thread, you will find a LOT of information.
I think that once folks get started and see benefit, they post less frequently and come back when they have problems or questions, or to update as to how it's going for them.
For me, it's been over one year since I had a relapse. I was a serial relapser before Tysabri. The best part of the whole experience for me has been NOT having relapses. In the interim I haven't had any progression either. I have regained my vision ( normal now), balance, no more vertigo or dizziness, no rotating eyeballs, less spasticity and stiffness (although that is still a problem) and less fatigue.
I'm not cured, no one is, but I FEEL a lot better since I started. I will have my 14th infusion this month and I am thankful every day for Tysabri. I love the once a month infusion rather than daily/weekly/etc. shots. I haven't had any adverse reactions or events.
Good Luck with whatever you decide! Come on back and let us know how it goes for you regardless of whether you choose Tysabri or not!
