Quote:
Originally Posted by Riverwild
Hi Katt and welcome to NeuroTalk!
I haven't had a relapse or flare since I started. I can't give any advice as to that, I still feel good.
I do know that even with Tysabri you still have relapses. They are less frequent and milder for most people. Everyone is different. You should talk to your neuro and if you ARE relapsing, a dose of steroids may help. You CAN have steroids, just not long term steroid therapy, such as pulse therapy.
Please come back and let us know how you are doing, ok? I hope things improve for you!  |
Yes, I just finished an oral course of prednisone. I was hoping the whole time the pills would do the trick so I could avoid IVSM.
Luckily they did, or the Tysabri kept the flare short if not sweet, and I did not need IV steroids. I am coming out out of it slowly now.
Before Tysabri I had 4 MAJOR relapses a year and was worried I would be stuck in a wheelchair...those fears stuck with me and even though I knew Tysabri was not a cure and I would still have exacerbations this first one since has been hard for me to deal with. Even though I was only reduced to cane, then walker, and am now ok without assistance for short periods again.
It is mostly me being silly, borrowing problems and not looking at the big picture. Discounting the positive in my worry and fear.
Thanks for the responses!