Hi,
i just wanted to reach out and tell you I'm so sorry you two are going through this. I know it's frustrating. If it's any comfort, there are others who have gone through these valley's as well. Sometimes, it just takes time to feel better. And even then, he may not ever be completely well.
So many things can come into play with in our bodies. At the risk of sounding like a mother hen, has he had his potassium levels checked?
If mine are just a little low, ( on the low side of normal) I will still get weak.
Plus, have you checked to make certain that his food intake doesn't contain anything that would exascerbate his MG? Quinine in water will, and there is a whole list of chemicals that are in foods that can cause a problem.
Unfortunately for our tastebuds, eating natural is basically the best for us.
Same with meds, and vitamins, one has to be very careful.
Hope things will turn around soon.
Love Lizzie