Hi Connie,

I think my first excuse was that there was nothing they could do for it, so why bother knowing? The first neurologist, who dx me with "probable" said, "if it is MS . . . it would be my recommendation that you do not have children, due to your presenting symptoms and uncertainty of this disease". I was 31 at the time, and the clock was ticking. I've since had two daughters who are now 16 and 12, and I really don't think I would have made the same decision at the time if I KNEW it was MS. Denial was a safe place to go.

They were doing trials with the interferons and LDN, but I haven't heard the results yet. Last I heard, the doctor who "discovered" LDN for MS was recommending Copaxone was ok, but not the interferons.

I take LDN alone, mostly because I have considerable difficulty with many drugs, but also because my first few specialists told me that steroids and the CRABs weren't going to help in my case. We have the highest prevalence of MS in the world, here in Canada, and my neuro's worked out of the research center that conducted many of the trials on the CRABs.

Most of my lesions are in my spine (which is not particularly good), and because of that, they suggested that the CRABs (and/or steroids) would not be effective for me. Of course I was not happy with that answer , and researched myself . . . but in the end, I agreed with their recommendation.

You are right, this disease can turn on a dime, but that can happen with or without meds too. I am now 17 yrs into it, and doing relatively well I guess. There have been some hard times for sure, but I won't regret my decision.

Just take your time deciding, and know that you can always change your mind (to either go off again, or on) in the future.

Cherie