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Member
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Join Date: Oct 2006
Posts: 371
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Member
Join Date: Oct 2006
Posts: 371
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Awe..Hey, it really is going to be all right. And yes it is very possible to test negative, not only to the blood work, but to all of the tests, and still have MG.
And believe it or not, some people, yours truly here, have tested neg with the blood and then 4 years later, have it show up on my labs. So go figure.
From what I understand, and from what most experts say is that it really all depends on the amount of antibodies that are in the blood stream at the time of testing.
Same with the emg's and like tests, if you have the test during a "non flaring" time, and you are feeling strong, it usually won't show up. These are the reasons it is so hard to test, and diagnose.
I know of one person, who has tested negative to everything, and is in a severe state, to the point of needing a powerchair, and can barely hold himself up, and all tests, except for the tensilon came back negative. So it is indeed complicated.
Each case is so different. One expert said the only thing that was consistant with Myasthenia is it's inconsistancies. And that is from someone who deals with it on a daily bases in the medical community.
Same with treatment, each case reacts differently. Some only need Mestinon, others need Prenisone and Mestinon, and still others need those, and other treatments like, cellcept, cyclosporine, imuran, ivig, plasma etc.
It's frustrating for certain.
You'll be okay, it'll just take a while. the best thing you can do is read everything you can about it.
and Ask away...
I'm not sure why it says I'm a junior member, I've been here since it started..lolol... I don't come too often, but please feel free to ask away..
Love Lizzie
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