Quote:
Originally Posted by lady_express_44
Hi Connie,
I think my first excuse was that there was nothing they could do for it, so why bother knowing?  The first neurologist, who dx me with "probable" said, "if it is MS . . . it would be my recommendation that you do not have children, due to your presenting symptoms and uncertainty of this disease".  I was 31 at the time, and the clock was ticking. I've since had two daughters who are now 16 and 12, and I really don't think I would have made the same decision at the time if I KNEW it was MS. Denial was a safe place to go. 
We have the highest prevalence of MS in the world, here in Canada, and my neuro's worked out of the research center that conducted many of the trials on the CRABs. Cherie |
Wow, I can see why you made that decision, and I am sure you are glad you did everytime you look at your kids. I am from PA originally. That is up in the area where the prevalence is pretty high in the US... above the 37th parallel. I am amazed at what I have learned about this disease. I am a research fanatic... always have been. I find this disease very intriguing with all the things that go with it, the fact that they can't pin point the cause yet, the difference from person to person, the way the areas of the world impact the prevalence... but, it also makes it very scarey when you have it.
I have heard the DMDs/steroid thing with the spine lesions. I have only had my cervical spine done, can the lesions go lower than that? Luckily, I suppose, I have none on my spine. I have 4 lesions, on is on or near my brainstem, and apparently that is the one that does and will cause the most trouble for me... until the disease progresses and I get more I guess...
I see the specialist on the 13th and I am going to discuss that with him. I am trying to do as much research before I see him cause I know the second opinion part is a moot point, and my regular neuro is not as knowledgable with this disease, so I want to learn as much from him as possible and bring it back to my neuro for my treatment.
Thanks again!
I am still trying to figure out everyones story, so thanks for sharing more of yours!