Yeah, I am very glad I had my family, and don't regret that decision either.

Spinal lesions are very sneaky, and from everything I've heard, once dx they often just rely on our symptoms to determine if we are likely to have lesions there. I know my docs can accurately predict which area of spine is acting up, based on the symptoms I present with. I don't have sneaky lesions though, mine are pretty obvious.

We can get lesions in the spine down to the L-level of the cord (for sure, maybe lower), but that is the T level of the spine. Our spinal cord matches in size to our spine when we are babies, but the cord doesn't grow and the spine does. Therefore, they only check the C and T spine when looking for lesions, but lesions may be found in the C, T, or L of our cord (perhaps even lower, but all housed in the T spine or very high-up L spine). Does that make sense to a nurse?

Yeah, brainstem ones aren't that great either. It's a nasty disease all around.

Good luck at your next appointment.

Cherie