Hi Sydney,
Whoever is supposed to be looking afrter you aren't doing a very good job by the sounds of it, i mean by leaving you in pain, no treatment, is not good enough in my book.
I don't blame you for feeling frustated, who wouldn't be ?, nope, i would be looking for answers elsewere.
You need to be in the hands of a real good experienced neuro, that is very capable of looking after you, maybe some here on this board can recomend you a good one, or someone here may even be reading this and may PM you, if you live in Victoria in OZ, then i can recommend you a very good one.
When i first got PN, i contacted a Neorpathy Association in my state and asked them for a recomedations for good experienced neuro's for PN, they give me two names, one of which found my cause of PN in the very first consultation [ thats after blood tests i mean ].
perhaps you could try something similar.
good luck
Brian