Hi Josie,

welcome to the forum, its a great place to talk, cry, ask questions, many a time I come here crying and left much happier.

I was diagnosed in December 2002, by my optomotrist and opthalmologist!!
When I was diagnosed I could barley get out of bed in the morning, now I'm soooo much better, but its still a struggle sometimes.

I'm on medication, also had a few IVIG's over the years.

I agree with Nancy Lee, find out as much as you can, and tell all your loved ones about it, especially taking someone with you to appointments, I found early on I'd leave the neuros office completly bamboozled, but time and experience has helped alot.

Also ask lots of questions here, as we've all been through the wringer already.

hope you weeks improved slightly
take care
redtail