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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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So sorry, Victor
Victor, I'm sorry the cost of your Tysabri remains a problems. Question - why not go to a different infusion center that charges appropriately?
As for their assistance program, through NORD, anyhow, they have a long process. I actually have the paperwork - and I'm still gathering all of the documents for them. Sigh. Like I have the energy for this! But they also told me that it will take time even when they do get it all - and they won't pay retroactively.
When I was on copaxone (for 5 weeks), their financial assistance was available to me immediately and it was seamless. Oh well.
Tomorrow I have my second infusion. I spoke to my neuro today and he said it was okay to have the Ty while on antibiotics. Not going to post more about this...at least until after I have the infusion. I'm already 5.5 weeks since my first one - and I don't want it delayed any more!
Vic - I hope it all works out for you....
~Keri
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