A Warm Hello!

I'd wanted to write a quick note just to alert people to something I have found helpful over the past two days.

WHen I'd had my latest exacerbation...earlier this year, certain portions of limbs were severely affected. THey had burining and pain, in the least. My left half of my left hand had this horribly (just one example of an area); yet, this hand would also contiue to become spastic.

I cannot take systemic NSAIDs, as they enivitably cause me GI bleeding.
I do use a topical NSAID cream made up by a compounding pharmacist, however.

I have used this topically at places of bursitis, etc. Well.. my left hand and my right foot were buring so badly...still two night ago, I had used this cream , every 6 hours on these two locations. This immediately quieted the pain and the burning. Each, the hand and the foot, are much more tolerable, even after 24 hours of applying every 6 hours. It see,s the nerves were inflammed. (Note: Sometimes these areas seem to quiet down for awhile and I think they are healing and the..whoa! The severe burining starts all over again! Now I have started this approach.)

I will continue to keep a close eye on this.. but ..wow! What a difference!

Also, my initial epsisode of severe inflammatory neuropathy (after Depakote exposure) had startted with legs on fire and other limbs, areas of obvious nerve involvement.

As this had "quieted" some..as the pain had abated some... I had started rapid..ultra-rapid movement disorder. It was not a movement every 5, 10, 20 seconds, it was a movemtn evry second...legs hopping as though I was running and/or bicycling as fast as possible.

Mirapex, in a few doses, did not h elp this. It may help some.. it did not help me. This only gave he horrible side-effects. (I do not mean to discourage anyone finding this helpful. People are very different in their reactions to meds.)

NOw..the movements have slowed down...are a calming. Getting off of Mirapex has allowed me to sleep more. I have also found magnesium chloride helpful. (My doc is fine with the magnesium supplement. I am cautious with this...see Magnesium thread by MrsD to learn more about some of the issues involved in using this and other vitamins/supplements. First of all...consider safety! Very important! Learn the pros and the cons to adding any vitamin supplement..always.)

This helps with symptoms right now..yet, I realize it is not a "cure" per se.

FOr months, I was jumpy, jumping and sleepless...after the neuro exacerbation. NOw I am so sleepy.. I fall alseep standing up in stores (No mirapex opr other dopamne agonist involved).

Just a quick update and...wanted to relate the relief from placing a topical/transderaml anti-inflammatory directly on limb with burning nerves.

Hope everyone is experiencing some improvement?

My very best to all!