Magnate
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
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Magnate
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
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If it were me? And I wanted a
thorough 'going over' - AND your insurance can help? I'd go to Hopkins.
I myself got the diagnosis thru Georgetown University [which USED to be in the top hospitals list but isn't now because they've changed the criteria] I'd gotten the very first appt I could get to [I was desparate!] and that'd taken a 2 week wait. It would have been a 3 week wait for Hopkins for me. [Bob? Why that was I have no clue? It was over 4 years ago tho.]
IF you are going that far tho? Go to the best! I tell you it can be absolutely worth the wait.
I also seem to recall from here or elsewhere that Emory in GA and Duke in NC had satisfied PN'ers... I wish my recall was better?
Aside from BobB, I know of several other PN and CIDP folks who have been thoroughly tested and evaluated at Hopkins...and all seem to be happy with the facility [tho maybe not with the diagnoses]. Baltimore is a bit too far for me to travel comfortably so I stayed in the area... trying to do a 2+/- hour drive on my own made me uncomfortable in my PN-ness at that time. I couldn't do it now.
Hope this helps. I sure wish I could be more useful. - j
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