Thread: Now What
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Old 05-12-2008, 02:29 PM
Janet Kelley Janet Kelley is offline
Junior Member
 
Join Date: Sep 2007
Location: Maine
Posts: 17
15 yr Member
Janet Kelley Janet Kelley is offline
Junior Member
 
Join Date: Sep 2007
Location: Maine
Posts: 17
15 yr Member
Default Thanks for the support

It's really nice to have this forum to read. He's been home from the hospital for 3 weeks now - had two more IVIG's last thurs & friday - he had a terrible reaction and spent last night in the local hospital. We are now waiting for approval to try Rituxan for MG - (he had one treatment at Maine Medical Center last month w/no bad side effects!!!) there have been some case studies that look very promising for him. The drug has not been approved by insurance ($6K per treatment) and I believe it would be 6-7 treatments 2 weeks apart to start . His doctor is also willing to do a paper (study) if the drug company will pay for the medicine.
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