Quote:
Originally Posted by nanavic
I hope I am posting to the right place. My name is vicki I am 54 years old. I started having seizures when I was three months old. then had polio at 15 months old and first diagnosed with post polio in 1985.
I am currently looking for information on seizures. I am having an EEG in a couple of hours and seeing a new neurologist the end of the month. For the first time in my life I am ready to learn about seizures so I really do not know much right now. My grand mal seizures have been very sparadic. I had lots of them from 3 months till 3 or 4 years old. then did not have another till I was in my late 20's and then did not have more till three years ago. I have now had 6 or 7 in the past three years.
From what I am starting to learn I think I have had partial (or I am not sure of what type yet all my life). Not sure if it was normal with seizures back in the late 50's and 60's but doctors always looked at me like I was making things up when I tried to explain what went on in my head and I learned very young just not to discuss certain things. I did alright with this till three years ago when things have become more constant.
Things get complicated when you add the post polio because many things could be symptoms of pps.
The information on seizures on the internet is quiet involved. So if anyone has any ideas where I can start to get some more generalized information I would be greatful
vicki
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Hi thee Vicki:
Please allow me to also say Welcome.
I have an 85 year old Aunt (spoke to her last night on Mothers Day).
She has been diagnosed with seizure disorder, well, for most of her life. She also had her thyroid gland removed (which doctors attribute to her losing her hearing entirely). Her thyroid was removed. She was put on Synthroid, which she still takes.
She was never diagnosed with epilepsy. She would just, for no apparent reason, FALL and bang her head all the time.
She has been given every test in the book, every MRI of the brain, etc. And they found NOTHING!!!!
But they gave her dilantin, and then neurontin. They have cut back on her neurontin quite a bit. Her last seizure was about 6 years ago.
They never found out why.
I wonder if her thyroid condition ever caused the seizures. She never could find a reason.
But last night she did tell me (she uses one of those TTY machines for the deaf. I speak, and she reads the machine. And she said "the doctor told me I lost my hearing, it's called Nerve deafness, and as soon as they took out my thyroid, I lost all ability to hear any tunes or melodies.
So we have had to communicate though the machine. She speaks perfectly normally, wears two hearing aids, but can't hear a thing.
But thankfully her seizures have abated. And she made it to 85. And she feels fine.
So you take care of yourself.
Melody