Thread: Results- I have to crow!
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Old 05-12-2008, 04:18 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default Results- I have to crow!
I had my one year neuro appt. since going on Tysabri.
The doc did a full exam, listened to my chief complaint (still spasticity) and prescribed an increase in Baclofen ( 20 mg TID from 10 mg TID)

He is pleased with my progress and so am I! Everything appears normal! Who knew that a real doctor would EVER say I was normal!

All tests from my last appt came back normal, LFT normal, everything right in the correct ranges! I have been taking 2000 mg of Vit D all winter and he was semi concerned about that, but I reminded him that I work a long night shift and don't SEE the sun for months, and since the levels were within normal range He said keep it up and we will check again in 3 months.

I started the Baclofen yesterday and as I posted on another thread, I was able to put my socks on without a struggle!

I went to work last night and I made it ALL night without having to HOIST myself out of the chair and wait before I walked! I just got up and walked when I wanted to. I got stiffer as the night ended and when I came home this morning I was ready for more, so I took the last dose with my tizanidine and went to bed.

This afternoon I got right out of bed without stretching!!! ( I had to go reaaally bad!) I went back to bed just to do the stretches because it's routine now, but I FELT like I could have skipped them.

One thing we noted is that I haven't been SICK even once during this whole year! No colds, no infections, no blurting, no rashes, no NOTHING! I don't get sick much anyway but it's strange not to have even had a cold, especially with the population I work with coming down with everything under the sun in the past few months! Just this last month it's been diarrhea and vomiting non stop at work!!

I am glad that we have drugs. I was NEVER a pill popper, always worked through illness, hardly even took aspirin except for menses pain. I've even gone off the Tylenol 3 I took for that! (Could Baclofen work on mens. cramps??)

Now I am willing to try what my doc suggests when I DO have problems. If it doesn't work I can always quit, but things are better with drugs! I guess ya live and learn, huh?

I feel like I have been waiting for the other shoe to drop for the past year and something bad to happen. Now if it does, I can bend down and pick it up!!

Infusion # 14 on May 22!

Onwards and upwards!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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