Got up this morning and went to local clinic for blood work. Then I drove an hour to Champaign/Urbana Il for neuro appointment. He spent half of the appointment looking up articles on the internet so he could read me stats on med's. GRRRRRR! He knew that I was already familar with the literature. He would ask me, "What do you know about this drug? ... Yes, that is correct. I felt like a med student." I told him I was not willing to try rituxan. He gave me a sad face. So what if there have been 26 PML deaths from it?

Then he said he wanted me to get a MRI. It has been a little over a year since the last one. I think he could have told me that on the phone. Then he said if I do not show any new inflamation/active lesions I can get a MRI done every 6 months and stay off of any new treatment for now. Although he made it clear he is not happy with that decision. This is what they recommended as one option at the MS clinic I went to. If I do show new activity he wants me to try Imuran. They also suggested this. I said I would consider it.

I asked him about meds for fatigue, but he stated he does not prescribe stimulants. (I am not on an anti depressant, but he does not prescribe them either.) He also is not happy that my pcp has given me a script for a very low dose of clonazepam. I rarely take it, but I like to have it just in case my muscle spasms get too bad or I am really stressed out. He did agree that I could try taking baclofen every day and try increasing the dose to 2 times per day. I have only been taking 10mg on an occasional basis. I think I need a new neuro. When I switch my insurance in July from a HMO to an open access plan I think I am going switch my neuros to the ms center in St. Louis.

Treated myself to lunch at a Japanese restaurant after my appt and bought several books at Borders. Now I am exhausted.

Sorry to talk so much about myself. Hope you are all doing ok!!!

Any news about Frank?