I have had RSD now for about 7 years. It took 4 years to be diagnosed and the only reason I think I was is because my FP was so aggravated with me he sent me to a pain DR. My Family and friends try but don't really understand the amount of pain especially when I have a "flare up" as I like to call them when the pain is so unbearable I can not even be outside with a light breeze. i have never heard another DR or Nurse or person for that fact that I met that has ever even heard of RSD and its very frustrating.