Here is a link to the Today Show's web page, where they have a link to the Neuropathy Association. http://www.msnbc.msn.com/id/3032633/


Scroll way to the bottom of the page and click on contact. Here is a copy of what I just sent to them:

Dear Today Show,

Many people across the country set their vcr's or tuned in for the announced segment on peripheral neuropathy on the Today Show, Tuesday, May 13, only to be terribly disappointed at what came across as little more than a 45 second infomercial. We believe you can to do better than that for the thousands and thousands of folks whose lives are disrupted and heavily impacted by this condition, of which diagnosis is difficult if not sometimes impossible, and for which there are no "cures."

We really can't wait for a mega-star like Oprah to find out they have peripheral neuropahy (or any of the plethora of other nervous disorders which bring with them pain, lack of mobility, or severe disability) before the public is made aware of something that each of them could face someday. Most of us understand that the sooner our conditions are diagnosed, and whatever treatments are available are begun, the less damage and heartbreak we are likely to incur. And to do that viewers needed a little more than a superficial 45 seconds sound-bite.

Please consider a follow-up show, perhaps with a guest doctor (or better yet - neurologist), during which you might also interview in person one or two sufferers of this puzzling, disabling, and sometimes excruciating condition. Until the media is willing to give more time to important issues such as peripheral neuropathy and other lesser known health conditions than they do to the president's daughter's wedding or a cure for cellulite, viewers will never be given the information needed to help them with learning to take control of their lives.

Show us what the Today Show can do when it really wants to shine! We will be watching!

Sincerely,

D _______________


I bet if more of you sent an e-mail, they just might listen and consider that the need was not met with their 45 seconds of airtime. . . .