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Old 05-14-2008, 11:44 AM
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beautytransforming beautytransforming is offline
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Join Date: Apr 2008
Location: Gulf Coast, Mississippi
Posts: 194
15 yr Member
beautytransforming beautytransforming is offline
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beautytransforming's Avatar
 
Join Date: Apr 2008
Location: Gulf Coast, Mississippi
Posts: 194
15 yr Member
Default Had my 2nd opinion with MS Specialist

I went. It ended up being an all day affair, not at the docs, but the drive home (He is 3 hours away, but the trip home was about 5 hours at least).

Anyhow, the MS specialist concurs with the DX. He was amazed at my exam though. He said, "If I didn't have your history and reports in from of me, I'd tell you to go home that nothing is wrong with you."

He did an EVP, one test I did not have. It was normal, thank goodness.

He said with me having the lack of progress that I do, to go on CRABs ASAP. He said the earlier the treatment begins, the better, and the fact that I have only had 2 semi-serious relapses in 8 years, not to borrow trouble. He also doesn't recommend LDN right now, because I am not advanced, I am "normal" other than the clinical, and to save that for if and when traditional meds don't work or I am advancing more.

We discussed CRABs, and based on my lifestyle, he agrees copaxone is a good start for me. He said because it was 8 years in between relapses, that I should be fine with the build up time (8-10 months) that it takes copaxone to fully start working. He said if I were having residual troubles that he would recommend an interferon for me.

He said I will be on this for life, but also added that I won't He said there are new advances on the horizon, hopefully a new by mouth med by 2010, and maybe even a cure or something that works MUCH better in my lifetime. He said, of course we can't know for sure, but the scientists remain hopeful.

He was great. He was well informed. Only thing he could not answer was my questions about IV Ozone therapy, which is hydrogen peroxide (basically) mixed with your blood and infused into your body that basically kills viruses that are dormant. It is very alternative, and is in the line of work I do. Once again, he said based on my history, I am not having troubles right now, so lets do preventative. If we move to the point of needing to treat, we will re-evaluate... but right now, we just need to prevent.

Over-all great appointment. Worth it in the end. Going back to my neuro on Monday to discuss what the specialist had to say, and start on the copaxone, I guess.

Now, I am back off to bed. I started getting sick the day before yesterday, and by last night had a fever and a sore throat. YIKES! It is scarey to get sick now, cause the last one led to my bad relapse, so I am trying to keep my fever down and drink lots of water and get lots of rest. I think I just quit my second job, cause I was supposed to work it today. I have not had to call off from a job in over 3 years, and have done so about 4 times already with this one.... great.
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Diagnosed with MS 4/3/2008
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Had onset attack in 4/2000
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Can stop blaming myself for symptoms now.
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