What about mri's? and extensive blood work? Finding a doc that will look outside the box has been my mission this year. I have traveled like many here out of state and found the battle very tiring and painful. What I have learned from here is you can't give up. It just takes that one doc and the other ones you come a long that are "losers" you have to try to forget. If you can maybe send your records to some major hospitals and see if they can help you or would like to see you in person. I did that for Mayo and they didn't think they could so I went to Cleveland. Take care