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Member
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Join Date: Nov 2007
Location: France
Posts: 346
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Member
Join Date: Nov 2007
Location: France
Posts: 346
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Hi Nancy Lee,
Mestinon is like Aspirin, it cuts down the fever but doesn't cure the source of the problem.
IVIG might be effective in reducing the anti-bodies but 20 % of the patients do not react positively. When effective, the benefits last no more than 6 weeks.
Once again, the cause of the anti-body production is not addressed.
I did not react to IVIG nor to plasmapheresis and my treatment consists of Mestinon, steroïds (Pred) and immunodepressor (Cellcept) and it started to really work after 5 to 6 months.
My present concern is a weakness in the legs which limits my ability to walk (one hour maximum at slow pace) but I recently started to swim again and I increase the distance every day without any problem.
Good luck and be patient!
Maurice.
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