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Old 05-15-2008, 06:16 PM
nancylee nancylee is offline
Junior Member
 
Join Date: Aug 2007
Location: Ballston Lake, NY
Posts: 34
15 yr Member
nancylee nancylee is offline
Junior Member
 
Join Date: Aug 2007
Location: Ballston Lake, NY
Posts: 34
15 yr Member
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Quote:
Originally Posted by neutro View Post
Hi Nancy Lee,
Mestinon is like Aspirin, it cuts down the fever but doesn't cure the source of the problem.
IVIG might be effective in reducing the anti-bodies but 20 % of the patients do not react positively. When effective, the benefits last no more than 6 weeks.
Once again, the cause of the anti-body production is not addressed.
I did not react to IVIG nor to plasmapheresis and my treatment consists of Mestinon, steroïds (Pred) and immunodepressor (Cellcept) and it started to really work after 5 to 6 months.
My present concern is a weakness in the legs which limits my ability to walk (one hour maximum at slow pace) but I recently started to swim again and I increase the distance every day without any problem.
Good luck and be patient!
Maurice.
Maurice,
Thanks for taking the time to post a reply. I am struggling to be patient, it has really been difficult, but I will hang in there because it is what I have to do! Anyway, I am glad to hear that you are swimming and doing something you enjoy to take care of yourself. Thanks for sharing your knowledge & experiences w/ me!!!! Take care.
Nancy Lee
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